Hitting AS for Six – Living with Axial SpA: an Invisible Illness

The presentation Hitting AS for Six – Living with Axial SpA: an Invisible Illness, by Charlie Robards was recorded during the 2025 PCRMM Navigating the Future of MSK Health: Evidence, Experience & Patient Voice Study Day on 13^th September 2025.

Charlie Robards has been living with Axial SpA for 30 years, but loves his sport. He is a fierce competitor on the cricket pitch despite suffering with a prolonged recovery from his Axial SpA. This short presentation is part of his a burning desire to raise awareness of Axial SpA. He discusses his journey with Axial SpA, what it is like to live with the disease, the different management and coping strategies he has adopted.

He also describes how Axial SpA impacts his work life, and how he adjusts his routine to work efficiently with Axial SpA. Before the Q&A session starts, he also highlights some of this personal challenges and triumphs, as well as his future plans as a patient advocate.

Once the purchase is complete, you can watch the presentation, including the Q&A session, in the PCRMM Resources section of the website.